Progressive Supranuclear Palsy Magnolia Day (8th April)
The NHS describes Progressive Supranuclear Palsy (PSP) as “a rare and progressive condition that can cause problems with balance, movement, vision, speech, and swallowing”.
The PSP association site suggests that around 4,000 people live with PSP in the UK and in the early stages PSP can be mistaken for conditions such as Parkinson’s. Alzheimer’s, Stroke or Multiple System Atrophy, so misdiagnosis is common.
PSP a lesser-known neurological condition and it is important that awareness is raised as there is currently no cure and symptoms can only be managed. Only through research and education can this degenerative brain disease be battled, more must be done to find better ways to handle it and prolong life. This is where PSP Magnolia day comes in, to get everyone talking about the condition.
The disease steadily gets worse, affects the brain and can eventually cause paralysis. The PSPA has agreed on the following as its strategic research aims:
- To improve the early diagnosis of PSP
- To understand the causes of PSP and the chain of events leading to its development and progression
- To develop new treatments and improve clinical care and social support for people affected by PSP
- To stimulate the search for a cure by encouraging collaboration and infrastructure development.
If you would like more information on the disease or how you could help, please visit the PSP Association website.
Photo by DavetheMage (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY 3.0 (http://creativecommons.org/licenses/by/3.0)], via Wikimedia Commons